Endometriosis Resources

Please note that the websites, videos, books, and online chat listed below are educational resources and are not necessarily endorsed by the Boston Center for Endometriosis.

Websites:

Endocenter.org
Phone Numbers (USA): 561– 274–7442 | Toll Free: 800–239–7280
The Endometriosis Research Center was founded in 1997 because of the limited research, support, education and awareness for endometriosis. The ERC strives to improve the quality of life for women and girls with endometriosis through their extensive programs and outreach efforts.

Endometriosis.org
This website is a global forum for news and information about endometriosis around the world. The focus is on “international collaboration and the exchange of experiences to deliver up-to-date and evidenced based information and news about endometriosis.” 

Endometriosisassn.org
Phone Number (USA): 414–355–2200 | Fax: 414–355–6065
Endo-Online is a well known website that represents the Endometriosis Association, the first organization in the world to provide information on endometriosis to females who have it. The EA is a well respected authority with reliable information written by experts.

Endozone.org
This website is a leading resource in connecting patients with endometriosis to clinical specialists in North America, South America and the United Kingdom. The site also provides links to the latest endo news and PubMed articles.

Videos:

Endometriosis.org on Vimeo
A collection of short videos, including interviews with Hans Evers and Diana Wallis and the educational piece “You Can Fight Endometriosis” from Endometriosis.org.

Laparoscopic Excision of Stage IV Endometriosis with Dr. Jon Einarsson
On April 25th, 2013,  Dr. Jon Einarsson presented a live webcast with Q&A on a Laparoscopic Excision of Stage IV Endometriosis case. The event was broadcast live on SurgeryU HD, and is now available to watch online at AAGL.org.

Books:

Ballweg, Mary Lou, and The Endometriosis Association. Endometriosis—The Complete Reference for Taking Charge of Your Health. Mcgraw–Hill, 2003.
Written by the founder of the Endometriosis Association and expert clinicians, this book is packed with information about managing symptoms, medications, and alternative treatments. It is primarily geared towards adult women, however there is a chapter on “Teen Endometriosis” that would be helpful for parents, family members and friends, as well as health care providers and educators who advocate for teens.

Evans, Susan MD, and Bush, Debra QSM. Endometriosis and Pelvic Pain.
“Dr. Susan Evans, a recognised specialist in the treatment of endometriosis, has written an easy-to-read comprehensive summary of the up-to-date management of ‘endo’.” A free copy of Dr. Evans e-booklet “Pelvic Pain” is available for download on her website.

Mills, Dian Shepperson MA, and Vernon, Michael PhD HCLD. Endometriosis: A Key to Healing Through Nutrition. Thorsons, 2002.
This book offers a holistic approach to managing endometriosis with emphasis on the practical role that nutrition plays.

Phillips, Robert, and Motta, Glenda. Coping with Endometriosis: A Practical Guide. Avery, 2000.
This book addresses the psychological and emotional concerns related to endometriosis and offers practical ways to cope with chronic pain.

Online Chat for Teens with Endometriosis:

The Center for Young Women’s Health
Free, monthly online chats for young women (aged 13 to 22) with a confirmed diagnosis of endometriosis. The chats are moderated by a nurse specialist.